Friday, July 15, 2005

Rancho Los Amigos Nat'l Rehabilitation Medical Center

- UPDATE!

Rancho Rehabilitation Center
This hospital is a major rehab ...UPDATE...
It appears Rancho Rehabilitation Center will remain open for now. Thanks to everyone who has contributed. Remember, it isn't over. Everyone remain hopefull.

Wednesday, July 13, 2005

Dr. Ruth Cameron Webb,Ph.D.

Ruth and i met in 1996 via my web site. What a wonderful woman she is. Pleas check out her books as well as her web site.
Link to Dr. Ruth's book's as well as her web site.

http://members.pcpartner.net/rcw/

Tuesday, July 12, 2005

Elissa Nadel

This woman is a beautiful person. Here's her story.


Elissa Nadel

Hello, my name is Elissa Nadel. I would like to tell you my communication history how I found my voice. I want you to hear how I have continued to progress with the use of technology. My goal is that you find hope and courage from my personal story.
As a child I learned to use an alphabet communication board. I used my eyes to guide my listener to the selected letter or word. I used this type of communication board, on and off for thirty very long years. The communication board was frustrating and took a lot of time. It was hard. In 1961, a friend of my family adapted an electronic typewriter with a single-switch device for me to use at home. It broke down a lot. It too, was frustrating.
I learned about electronic switching devices in 1967, my school set me up with a typewriter with a head pointer. This was difficult (even though I had better head control in those days). So it was back to the communication board once again. But the new communication board was better; it had more parts of speech and a bigger vocabulary. But it was still slow and frustrating. I used this board from 1970 to 1981.
In 1978, I got my first motorized wheelchair. I was very happy because I could get around easier. In those days I never imagined that someday I would be operating a talking device through the electronics of my chair. In 1979, I had my first try with a computer that had a scanning device. It was a Zygo® computer with no voice, but it did have a printout feature.
In 1981, my mother and father purchased an Express3, a Prentke Romich Company communication aid. I became an AAC (Augmentative and Alternative Communication) user. It was mounted on my wheelchair. It didn't have a voice. But it did have a single-line printer. I operated it by using a single-switch scanning technique. I didn't have a speech therapist at the time, so I never really learned how to work it very well. I think not having a speech therapist was a problem in those days, and remains a problem today for many people in need of help with communication devices.
From 1984 to 1990 many things happened for me. I moved into my own apartment in an independent living center, began using a ScanWriterâ„¢ to communicate, and equipped my home with electronic computer devices. In 1987, I enrolled at Long Beach City College and began working with the speech therapist, Marilyn Edwards, who has stayed with me through the greatest phase of my communication history - the last nine years of my life.
In 1990, I had an IBM® home computer and a PRC Light Talker™ on my wheelchair. Working with Marilyn, I learned how to "talk" using a single switch and then became more confident and mastered a more complicated program. Next, Marilyn and I convinced the computer technicians that I could switch from a single switch and use a multidirectional joystick. Wow, what a difference! I learned how important it is to continue to push myself into learning more and being a better communicator.
During this time, I also got to know Pat Perreault, my PRC Regional Consultant, who has become a great support to me. In fact, Pat is the first one who told me that I could probably move up to another PRC communication device, the Liberator. Pat said that it would improve my communication. You guessed it - I got a liberator with Words Strategyâ„¢ in 1993, with the help of my regional center counselors and Marilyn and Pat. They all worked very hard for me.
Now, I learn all I can. Last year, California Department of Rehabilitation approved several funding requests that my speech therapist presented to them. I was given the MIKEâ„¢, a T-TAM, and a wireless transmitter that allows me to interface with a tabletop computer through my Liberatorâ„¢. Plus, they also approved and purchased a 100 Mhz Pentium desktop computer for my home use.
I am now enrolled in computer classes at college and am learning windows programs. I can practice at home and I am also on the Internet. In fact, I am learning how to pay my bills through online services. This is all so incredible!
I am so grateful! Thank you very much for listening to my story. It's wonderful to be able to "tell" it! I am happier than I have ever been in my life, because now I have a voice and a purpose, and I feel more a part of life. I want to thank all the people who have helped me to get here. I also want to thank my speech therapist for helping me with my speech.
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I hope you like this speech. I present it at conferences for PRC. My speech therapist helps me write because sometimes I have problems making good sentences.
Two years ago, my speech pathologist told me about Pathfinder. The Pathfinder has enhanced my life tremendously. I am able to talk with almost anyone now. If time and money were not an object, I would travel around the world and tell people about assistive technology, especially the Pathfinder.
Something I thought you might find of interest, I am an active participant in our campus Unique Club and Danceability Club. Unique club is a student-centered educational group that includes student presenters that travel to local elementary and middle schools giving insight on what it is like to be a college student with a disability. The club inspires younger students and encourages them to reach their goals. Danceability Club is a group of dancers that all have disabilities and perform around Oregon.

Cerebral Palsy Portal

Keven Mills Blog
His Blog is full of helpful infomation.



http://cp-portal.blogspot.com/

His Blog E-Mail address is;
address http://www.ncartcoalition.org/

Disabled Need Support, Please

Dear Friends, I am asking for some help. It is very important for us to get as many people as possible to sign this letter and send it to congress to help our disabled. If you would be willing to copy this letter and hand it out to friends, co-workers, clients, anyone who can help. It is important to get as many of these letters to congress as possible. The deadline is August 1. This is for custom equipment for our disabled community. The address to send your letter: NCART, 1050 17th Street NW, Suite 600, Washington, DC 20036. Attention: Sharon H
The link if you are interested in reading more is: http://r.vresp com/?PhillipsTurnerCommun/02e0­c531f6/352241/7c715e6a92/7a363­d7
Click on Letter to Congress
Thank you for your help,
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Tuesday, July 05, 2005

C. P. Advice